Ending Song

Today was my wifes last radiation treatment. God bless her and our family....

Ending song

No more needles,
No more knives,
Time to heal,
And stop fighting for our lives

No more storms,
No more winds,
Time to heal,
Forget the lightning and the sins

Somewhere in the middle of it all,
between the wilted flowers and babies breath ,
You understand what it means-
In the midst of life we are in death-

Somewhere in the middle of it all,
I have found my old friend,
She was hiding in plain sight,
Lucky souls, sometime mend


"No matter what happens now
You shouldn't be afraid
Because I know today
has been the most perfect day I've ever seen." t. yorke

First Treatment: Down the rabbit hole

Yesterday was the first of six chemo treatments. One treatment every 21 days. With the hormones and drugs, the nausea was somewhat limited. I say "somewhat" in that she spent most of the afternoon in the bath trying not to hurl.

It's interesting, the yarns this doctor like to spin- of the exceptional case of the woman who cleaned the carpets until 4am (because of the reaction to the steriods). It's kind of like stories about Big Foot, or the Loch Ness Monster. Urban Medical Myths. It gives the patient the hope that they will be invincible during this process. Maybe that's not wrong. Maybe we all need to be told a "yarn" to get through the day.

From a outsiders perspective- I don't see how you can not get sick from it. Sitting there watching them stuff four gigantic syringes and an IV of red and clear chemicals into her portacath- knowing generally (but not with exact knowledge) what these chemicals do. Even if they weren't designed to kill all the cancer (and good cells) in your body, just the volume of liquid would be enough to make you yack!

We are in the thick of it now. Temperature readings at 4pm- crackers and yogurt for dinner. Super sensitivity to smell. Falling asleep to WC Fields movies. Slow moving and cautious.

Hell Alice, where do we go from here?

Shaved

Last night after the chemo doctor’s visit with my wife I shaved my head. Why? A few reasons:

One is my wife is almost assuredly going to lose her hair- I told her from the first diagnosis that I would shave my head in solidarity. I also always wondered what it would look like. I am half bald anyway, and the more and more I got tired of looking at the thin strip of hair across the top of my head in mirrors, security cameras at drug stores and banks- I felt it was time. So it is a mixture of vanity and altruism- is that wrong?

Anyway- the reaction from my wife was tears. My face wasn’t “framed” the way it was before and it brought home the reality that she would lose her hair soon as well. She said my eyes looked lower on my face- I am still trying t o figure THAT one out.

My youngest son called me an alien and a very old looking Lex Luthor. I am calling him Clark (as in Clark Kent, we both like the television show Smallville).

My oldest son was like, “Huh. Maybe you should have waited a couple of weeks until Mom started losing her hair.”

I love my older son more than words can tell- Wise and droll.

I think the other reason I am doing it now is just to get it over with. Let the kids get used to one of their parents with a bald head, so the other one isn’t so much of a shock. Let’s get the jokes out there, get it out of their system so that they can recover quicker and get on with life.

I think there is another part of me that just wanted to do something, anything- different. In all of this process, there is a sense of helplessness. Cleaning the house, taking care of the kids and wife when she is down, cooking, trying to keep a handle on the job front is driving me a little crazy. The head shaving thing is a way for me to put the subject out there for everyone to see. Maybe it’s a cry for attention. Who knows? All I know is I am glad and a little scared I did it-

EDIT: As it turned out, it was a very positive thing to do. We went out to dinner last night with friends. We talked about it hair loss, cancer, chemo- my wife was laughing and having a good time (some of it at my expense). We went to a Sangria Festival at a local restaurant afterwards where they had airbrushed tatoo's. After some discussion, I had a sun painted on the back of my head. My wife picked out the spot- Everyone loved it-laughed and had a great time.



The lesson is- Bald is okay, beautiful and fun.

Back to the world, for a little while

Finally we are through the "surgery" month. Three procedures (core biopsy, lumpectomy and nodal biopsy and finally the portacath insertion). All pretty much back to back over the last three weeks. I think we are all so tired, the word cancer has lost it's power. It doesn't seem as dangerous and fearful. It's now like an old nasty relative that you have to invite to dinner every so often, just because he is part of the family

Of course that will change when the chemo starts.

Is the cure is worse than the injury? Six months of elective chemotherapy, followed by six weeks of radiation. The irony is that they are pretty sure that they got all the cancer- Her nodes were fine. The chemo is an insurance policy, of sorts.

The survival rate over 10 years doesn't improve with chemo. Maybe 2%. She is still in the 90% group, so she will be 92% after chemo.

The recurrance rate does. Almost by 7%, depending on how you work the averages. She is going to be in the 83% range of not getting it again. 83% sounds a lot better than 76%.

So would you give up a year of your healthy life for a 7% chance that you wouldn't get this disease again? That's basically the choice. The nasty part is, there is no guarantee which side she could be on- the plus side or the minus side.

The fact is that they still don't know what causes it. It feels like they are trying to cure a bullet wound with a sledgehammer. The whole cancer industry doesn't seem to make any sense to me- I feel they don't want to know the reasons, because they would find a cure if they did and the industry would die-

But hey, up until the beginning of this month I didn't know, or want to know shit about this stuff. I am no expert by any stretch of the imagination.

Anyway, back to the world again- We have about two weeks before the first treatment. I am already planning to shave my head in solidarity- which isn't as big of a sacrifice as you would think. I am already half way there!

Back to the road, back to work- back to something that appears to be normal for a little bit...

I am looking forward to it- so is she...

The gift of Gauis

There is a quote I grew up with-

"God grant me the gift of Gaius, so that we can see ourselves as others see us"

I was thinking about that phrase tonight- I was wondering if the Gaius mentioned was Gaius Plinius Secundus or otherwise known as Pliny the Elder that lived in Rome around 79 A.D. ?

EDIT: A friend pointed out to me that the Gaius mentioned was a biblical reference, the person who John was writing to in John 3.

Google, all source of the knowledge of mankind wasn't very helpful.

I wasnt very helpful today either. Working out the details of the chemotherapy with the doctor today. When asked my advice, I was angry and fearful. I didn't like the doctors. Doctors need to be like pilots- they need to be reassuring. This guy was all over the map- he wasn't reassuring.

It made me mad.

The microscopic cancer cells that were potentially in my wifes body made me mad.

Washing the dishes, doing the laundry, trying to keep my attention on my job- made me mad.

In the end I went back to the quote- In order to see yourself, you need to step out of yourself- give us the gift to be outside ourselves. I needed to do that- I didn't.

And I am sorry...

Cancerland

It's been three weeks since we entered Cancerland. The fear is gone. Action has replaced anxiety. There is already a sense of normality now, which I know is a strange thing to say.

The surgery was quick- She was officially diagnosed a week ago Tuesday with an invasive ductal carcinoma. Monday they had the surgery, yesterday she got the results of the nodal biopsy. Her nodes were clear, however that still hasn't saved her from the chemo and radiation because of her age. That appointment is next week.

The next 10 weeks will be very trying. This is like going into an uncharted part of the world- The last two days have been very positive- Clean nodes yesterday and the drainage bulb was taken off today. Co-workers and employers (both mine and hers) have been very understanding with the time we have taken off. Hopefully their patience will continue.

The most important thing is to keep things as normal as possible. The kids are holding up well. We will all have to wait and see how this goes. Don't worry about next week, when the next second demands your attention. In so many ways, we feel like we both have been unknowingly preparing for this for the last few years, physically, financailly and mentally. Now is the time to cherish in so many ways...

Last night

It was the Seconds Saturday contra dance in Wyoming, OH (an older suburb of Cincinnati). I danced for about an hour and some change, but my heart wasn't into it for some reason.

I decided to go outside and sit on the porch. The sky was clear, but the wind was high- moving the trees around. The old victorian style houses that populate the neighborhood of that part of Cincinnati looked spooky, bathed in the street light. The porch was dark. I sat on the cement steps and watched the trees move around for about an hour. Inside the ballroom, I could hear the muffled sounds of the band and the echos of the caller, calling out moves. I wondered how many nights like these had these old steps seen.

I don't know much about The Wyoming Arts Center's history. It is an older building, built in the 30's. Its an odd building with several floors of large meeting spaces, so I am pretty sure it wasn't a private home. What it is today, is a place for children and adults to learn how to play music, dance and create art. It is always busy, with people walking in and out of it with musical intruments tucked under their arms. It makes me happy that places like this still exist. Places with connections to the past. There are too few of them. Here is a link to their site:

http://www.thecenter4thearts.org/index.php

This was the last dance we will be going to for a while there due to my wifes illness. She is going in for surgery on Monday. I am sure it will be there when we get back- like the wind and the trees, and those old cement steps. I look forward to being there again.

I had pretty much

...just about given up on this blog. The reasons are varied- The biggest reason is that my wife diagnosed with a stage one tumor in her left breast about a week ago . While I won't go into the details- the next three months into the next year (and forward) is going to be a new chapter in our lives.
We have both been very healthy people. Unreasonably healthy in many ways. This has hit us like a ton of bricks and we are going to have to take things very slowly and as they come.
Work, friends and neighbors have all been great about the news. We hope this optimism will go forward into this period of our lives. I am sure it will.
I will try to keep this blog going forward- and I will make a concerted effort to keep this from being a melodrama-
Thanks to all that have been posting and reading- your input makes me smile...